Thursday, January 8, 2009

I am slowly coming back

Sorry it has been awhile since I posted. Life has been moving at breakneck speed.

Connor is now 2 months old. I can not believe how time is flying. October seemed about as long as the whole year.

We had some regression with the boys over Christmas. It was very hard for me to deal with a newborn and the boys treatment. I have a new resolve this year to make sure to get all of their supplements on a regular schedule. So far so good.

We have been able to take Taylor off of the Risperdol (sp?) We have started back on the 5-HTP for him and it is working. His progress reports from school have been improving. At this point and time that is all we can ask for. As much as I want to wave my magic wand and make Taylor, Spencer and Addi better, I can not. It is a slow process, but we have had much success this past year and Dr. Hulseman expect the progress to continue. She is expecting that by the time they are in Jr High that no one will know that they ever had an Autism diagnosis. They will be fully recovered just in time for me to have to deal with puberty. Brother!

We are not putting them back on the SC diet. We did not see any great improvement while we were on it and it was very difficult. We will stick to the GF diet as that is what seems to help the most. Also the supplements help a great deal. Right now they are all on 5-HTP, TMG, Folinic Acid, B12, Nystatin and EDTA. I also give them a probiotic every day. Taylor gets additional Selenium in hopes that by the next appointment we can start him on a heavier chelator.

We do have plans in the future to do the hyperbaric chamber with all 3 kids. This will be one of the last things that we add to their treatment. We will probably rent one for a month and see how that goes.

I still need to get before and after pictures of the kitchen posted here. In addition to the kitchen being redone, we took a wall out upstairs and now have a loft for the kids area. It has been a real help as I have gained about 100 sq feet of useable space. All that is left, for the time being, is the paint. It has been fun to get back into the swing of things and adding projects to my to do list. I love house projects. There is such a sense of satisfaction when they are finished.

This has been a rambly post. So much has happened in the past months. I am going to try to update daily. We shall see how that goes.

1 comment:

Heather L. said...

I'm happy for you about your loft! you are so good with house projects! I think it just comes natural to some people, whereas I have to force myself to think about them. I should get you to tell me what I should be thinking about for my home. :)